All children dream of their future. Matilda’s 10th birthday wish was that she could live to celebrate another one. She spent that particular birthday lobbying on Capitol Hill and asking for what most kids take for granted; a future. It was difficult for her at that point; she was days away from another surgery, the 8th major surgery of her life, and far from her last. She was suffering from the painful effects of tumor growth: she was tired, incredibly weak, and in considerable discomfort and pain. Nevertheless, she was driven to utilize her birthday as a message for those who could wield some power over funding for pediatric cancer; knowing full well, despite her young age, that this is the first vital step in ensuring that kids like her could look forward to another birthday.
Matilda was only able to celebrate one more birthday. But she wanted more. And she deserved more. No child should experience what Matilda did and no family should experience the loss we feel every single moment of every day without her…. this is why we continue her fight to ensure that other kids get a chance to celebrate a lifetime of birthdays. And until that next birthday is a reality, we are committed to celebrating each child as though every day is their next birthday.